Welcome, and thank you.
Thanks to the generous support of our sponsors and donors we are making progress towards better outcomes and ultimately, a cure. Since 2017, we have been raising money to allow research labs to focus on this rare and underfunded disease. Many obstacles exist in getting funding and hands-on attention for low-incidence diseases like JPAs. But we have raised over 2 million dollars to-date, and now have dedicated scientists working in two world-class pediatric hospitals. Imagine where we can go with your help and our persistence.
If you would like to learn more about our organization, have a question about our events or sponsorships, or would like to get involved in any way, please fill out our contact form. We are always looking to partner with others interested in our cause.